I don't know if anyone saw this, but last night on Channel 5 Angelina's neurologist was part of a news story about a boy who underwent a surgery called Deep Brain Stimulation. This is significant because while Angelina doesn't have the same kind of problem this kid did, she does have a type of dystonia and DBS helps to correct this. Dr. Acosta says right now they don't do this on anyone under 7 but when she gets older she could be a candidate before that time. It really is pretty fascinating that her neuro doc is part of a cutting edge team that are the only ones in the U.S. doing this type of thing on kids right now. It further strengthens my faith in Dr. Acosta that he can and will do everything in his power to help her without hurting her. We just love him!
Here are a couple of links to check it out.....
http://www.cookchildrens.org/neurosciences/services/Pages/dbs.aspx
http://www.nbcdfw.com/health/tips_info/North-Texas-Boy-Undergoes-Revolutionary-Brain-Surgery.html
ALSO - Marcey and I are putting together a non-profit corp to raise money to fund therapies that insurance does not cover like Hyperbaric Oxygen therapy and additional PT, OT and ST here at home. Insurance will only cover so many visits, but Dr. Acosta advised that intense therapy (i.e. additional therapy) would be the most beneficial to her right now.
With that being said, our friends Robin and Gregg Truitt - the kids God parents - have an annual Christmas party. This year they took it upon themselves to ask for donations for Angelina to start our fundraising process. They didn't expect more than $50-$100 to be collected but they raised about $300.00. We went to their party and lots of folks were asking for an update or the whole story if we didn't know them. It was nice to see people we didn't' know interested in Angelina. After we left Robin and Gregg talked for a little bit about how special she is to them and how dedicated we are to helping her and that any amount of money can help her.
Needless to say we were very touched by this giving and made sure we sent out a thank you email to let those folks know just what they were giving to. It was a great Christmas Spirit surprise!
2 comments:
WOW...thanks for that cry :( I'm literally sitting here sobbing. You really do have such a great support system behind you guys...Let me know if I can help you and Marcey in any way...I'd love to be a part in it. And I did see Dr. Acosta on the news...I'm an avid Channel 5 watcher...how great to know that Angelina has the BEST working for her...I love that little girl...give her some smooches!!!
It's so awesome that she has a doctor like that!! I'd like to help with anything I can too! Just call me or something if you think of something I can help with. Give Brady and Angelina hugs and kisses from Aunt Jen! Love you guys.
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